Developing a Helpful Infrastructure

Blogs and much of the web is overwhelmingly full of crushing excesses and outright crap.

The criteria for value are ease of use, how it enables connections, provides for open group formation and serves self-instruction. Used well, these tools leverage self-interest in ways that “add up” to more.  Tags are tools that represent information in ways that “add up” to more. They represent collaborations of the self-informed. Here are some examples:

Platforms
FLICKR
There is not much here using the tag “Asperger” but take a peek.
MEETUP
Two self-classifying groups using the tag: Asperger. ASAN-NYC  & Brooklyn Autism
MEDIUM
Have a look at the tags in this article as a result of this SEARCH. Not much here either.

Blogging Parents
Looking for Blue Sky
Her boy was 12-years old with Asperger’s when she started. She offers an honest account her parenting challenges.  I looked at about twenty of them. This one has something. I know of no others.
A Parent
A community is forming with the support of Millennium Brooklyn High School parents.  The main focus is on long-term higher-education opportunities and related education alternatives.

Blogging on Spectrum
Life with Aspergers
Gavin and his younger son have high-functioning autism. Gavin’s focuses on the positive aspects and the impact of labeling.
Aspergian Gal
A challenging read, the links, and resources are worth a look, such as “a take” on the Sheldon Cooper character in Big Bang.
Letters From Aspergia
Poignant on having AS, about the spectrum, and getting a diagnosis.

The Professionals
Asperger/Autism Network (AANE) Blog
A collaborative of professionals, family members, and AANE staff providing timely, relevant posts, tips, and strategies based in Watertown, MA.  For example, see the Parent’s Toolbox and Videos

SNYU ASD Nest Support Project
A significant resource with emphasis on NYC Middle Schools. The video selections are excellent.  The presentation by Jesse Saperstein on entering adulthood with AS is a good watch, but the site doesn’t work well.

Summary

The blogs, platforms and professional website links are unending but spending some time to point out findings is extremely helpful.  If not us who, if not now when?

Communications in this sphere tend to be dissociative. There is a vast choice of “platforms”.  Basic rules of “small group collaboration” are to select tools to achieve a task at the right time with a deadline.  For example, “Find parents who have used Princeton Review by end of this month and work with them to post a summary of their experience.”

Basic rules help.  First, make yourself a teacher. Find a few friends, and judge every person favorably. Second, carefully consider three aspects of a relationship in this medium or in person, 1) the observer, 2) the observed, and 3) the observation.  Third, be a philosopher, but be concrete in the sense of Martin Buber’s I and Thou imagines “it” and how Pablo Freire recommends the best way to build a “helping relationship” in Pedagogy of the Oppressed 

These three are all the rules needed. The rest of the basics can develop easily. (HERE)

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